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  • PSF Home
  • 2022 Conference Presentations
  • About Us
    • Who We Are
    • Board of Directors
    • Medical Advisory Board
    • Partners
  • Published Papers
  • Patients & Families
    • About Proteus Syndrome
    • Clinical Trials
    • Genetic Testing
    • Resources
      • Videos
      • Documentary
      • Glossary
    • Covid 19 and Proteus Syndrome
  • Researchers & Physicians
    • Proteus 101
    • Clinical Trials & Research Pipeline
    • Genetic Testing
    • Resources
  • Ways to Help
    • Donate
    • Fundraise
    • Family Assistance Program
    • The Jackie Johnson Sparkle Grant
  • Contact Us
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PSF
 Conference Presentations
​2022 

Below are the slides and further information from our 2022 Presenters. 
Dr. Leslie Biesecker, Dr. Chris Ours, Dr. Marjorie Lindhurst, Dr. Thomas Darling, and Julie C. Sapp, Sc.M., C.G.C.
Need to submit medical photos of your child to your doctor? Here are some helpful insights to get the best photos. 

https://info.visualdx.com/l/11412/2020-03-31/6h4hdz
​

bieseckerproteusmeeting2022.pptx
File Size: 2253 kb
File Type: pptx
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ourspsf2022.pptx
File Size: 18708 kb
File Type: pptx
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lindhurst_psf_2022.pptx
File Size: 69409 kb
File Type: pptx
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proteus_skin_2022.pptx
File Size: 6479 kb
File Type: pptx
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sapp_psf_talk_2022.pptx
File Size: 7188 kb
File Type: pptx
Download File

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The Proteus Syndrome Foundation, a 501c3 not-for-profit organization, is dedicated improving the lives of Proteus patients by funding AKT1 research. We focus on providing family support in the form of education and networking individuals living with Proteus syndrome with other families and medical professionals.

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Alex Hoag
In Loving Memory of
Alexander Hoag
7/5/90 - 9/20/99
"He did a lot in 9 short years."
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  • PSF Home
  • 2022 Conference Presentations
  • About Us
    • Who We Are
    • Board of Directors
    • Medical Advisory Board
    • Partners
  • Published Papers
  • Patients & Families
    • About Proteus Syndrome
    • Clinical Trials
    • Genetic Testing
    • Resources
      • Videos
      • Documentary
      • Glossary
    • Covid 19 and Proteus Syndrome
  • Researchers & Physicians
    • Proteus 101
    • Clinical Trials & Research Pipeline
    • Genetic Testing
    • Resources
  • Ways to Help
    • Donate
    • Fundraise
    • Family Assistance Program
    • The Jackie Johnson Sparkle Grant
  • Contact Us
  • Subscribe