Proteus Syndrome Foundation

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  • PSF Home
  • About Us
    • Who We Are
    • Board of Directors
    • Medical Advisory Board
    • Partners
  • 2025 CAMP
  • Patients & Families
    • About Proteus Syndrome
    • Clinical Trials
    • Genetic Testing
    • Videos
    • 2024 Conference Presentations
    • Glossary
  • Researchers & Physicians
    • Proteus 101
    • Clinical Trials & Research Pipeline
    • Genetic Testing
    • Resources
  • Ways to Help
    • Donate
    • Fundraise
    • The Jackie Johnson Sparkle Grant
  • Patient Registry
  • Contact Us
  • Subscribe

Clinical Trials & Research Pipeline

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AIM Inhibitor Miransertib in Proteus Syndrome Trial - Trial start Summer 2022. 
Phase 2 of the clinical trials will begin this summer at the National Institutes of Health in Bethesda, MD. 
For more information:  email here or call. ​

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The Proteus Syndrome Foundation, a 501c3 not-for-profit organization, is dedicated improving the lives of Proteus patients by funding AKT1 research. We focus on providing family support in the form of education and networking individuals living with Proteus syndrome with other families and medical professionals.

​Website Design by Timberline Webworks
Alex Hoag
In Loving Memory of
Alexander Hoag
7/5/90 - 9/20/99
"He did a lot in 9 short years."
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  • PSF Home
  • About Us
    • Who We Are
    • Board of Directors
    • Medical Advisory Board
    • Partners
  • 2025 CAMP
  • Patients & Families
    • About Proteus Syndrome
    • Clinical Trials
    • Genetic Testing
    • Videos
    • 2024 Conference Presentations
    • Glossary
  • Researchers & Physicians
    • Proteus 101
    • Clinical Trials & Research Pipeline
    • Genetic Testing
    • Resources
  • Ways to Help
    • Donate
    • Fundraise
    • The Jackie Johnson Sparkle Grant
  • Patient Registry
  • Contact Us
  • Subscribe