Medical Advisory Board for the Proteus Syndrome Foundation

Leslie Biesecker, M.D.
Genetic Disease Research Branch, National Human Genome Research Institute, National Institutes of Health, Bethesda, MD

Julie Chevalier Sapp, M.S.
Genetic Counselor National Human Genome Research Institute National Institutes of Health Bethesda, MD 20892-1253

Debra L. Collins, M.S.
Division of Genetics University of Kansas Medical Center Kansas City, KS.

Donate

The Proteus Syndrome Foundation, a 501c3 not-for-profit organization, is dedicated improving the lives of Proteus patients by funding AKT1 research. We focus on providing family support in the form of education and networking individuals living with Proteus syndrome with other families and medical professionals.

Website Design by Timberline Webworks

In Loving Memory of
Alexander Hoag
7/5/90 - 9/20/99
"He did a lot in 9 short years."

Vertical Divider

Medical Advisory Board

Donate

Follow Us