The Proteus Syndrome Foundation can help families diagnosed with Proteus Syndrome in a variety of ways. At times it can be a true struggle for our families to cope with Proteus syndrome. Please contact the PSF for more information.
The Proteus Syndrome Foundation, a 501c3 not-for-profit organization, is dedicated improving the lives of Proteus patients by funding AKT1 research. We focus on providing family support in the form of education and networking individuals living with Proteus syndrome with other families and medical professionals.
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In Loving Memory of
Alexander Hoag 7/5/90 - 9/20/99 "He did a lot in 9 short years." COLUMN WITH BACKGROUND COLOR |
