Proteus Syndrome Foundation

      Donate       

Patient Registry 

Connect With Us

    UK Chapter    

  • PSF Home
  • About Us
    • Who We Are
    • Board of Directors
    • Medical Advisory Board
    • Partners
  • 2025 CAMP
  • Patients & Families
    • About Proteus Syndrome
    • Clinical Trials
    • Genetic Testing
    • Videos
    • 2024 Conference Presentations
    • Glossary
  • Researchers & Physicians
    • Proteus 101
    • Clinical Trials & Research Pipeline
    • Genetic Testing
    • Resources
  • Ways to Help
    • Donate
    • Fundraise
    • The Jackie Johnson Sparkle Grant
  • Patient Registry
  • Contact Us
  • Subscribe
  • PSF Home
  • About Us
    • Who We Are
    • Board of Directors
    • Medical Advisory Board
    • Partners
  • 2025 CAMP
  • Patients & Families
    • About Proteus Syndrome
    • Clinical Trials
    • Genetic Testing
    • Videos
    • 2024 Conference Presentations
    • Glossary
  • Researchers & Physicians
    • Proteus 101
    • Clinical Trials & Research Pipeline
    • Genetic Testing
    • Resources
  • Ways to Help
    • Donate
    • Fundraise
    • The Jackie Johnson Sparkle Grant
  • Patient Registry
  • Contact Us
  • Subscribe

Family Assistance Program

Please print the Application and either email or mail to: EMAIL
or
Proteus Syndrome Foundation, 9296 Penobscot Ct., Colorado Springs, CO. 80924 U
SA

Proteus Syndrome Foundation Family Assistance Program/Application Process - This document explains who is eligible to apply and the application process. 

Proteus Syndrome Foundation Family Assistance Application - This document should be completed, with necessary supporting documentation, and returned via mail or email, for consideration.
To apply for funds from the PSF we will need a copy of a genetic test result confirming an AKT1 gene change.  
If you do  not have the documentation you can ask your geneticist for clinical testing and/or contact the PSF for testing facilities.

Donate

Picture

Follow Us

Picture
The Proteus Syndrome Foundation, a 501c3 not-for-profit organization, is dedicated improving the lives of Proteus patients by funding AKT1 research. We focus on providing family support in the form of education and networking individuals living with Proteus syndrome with other families and medical professionals.

​Website Design by Timberline Webworks
Alex Hoag
In Loving Memory of
Alexander Hoag
7/5/90 - 9/20/99
"He did a lot in 9 short years."
Vertical Divider
  • PSF Home
  • About Us
    • Who We Are
    • Board of Directors
    • Medical Advisory Board
    • Partners
  • 2025 CAMP
  • Patients & Families
    • About Proteus Syndrome
    • Clinical Trials
    • Genetic Testing
    • Videos
    • 2024 Conference Presentations
    • Glossary
  • Researchers & Physicians
    • Proteus 101
    • Clinical Trials & Research Pipeline
    • Genetic Testing
    • Resources
  • Ways to Help
    • Donate
    • Fundraise
    • The Jackie Johnson Sparkle Grant
  • Patient Registry
  • Contact Us
  • Subscribe