​Proteus Syndrome Foundation – UK Chapter
 
Chairperson and Support Group contact – Tracey Whitewood-Neal – you can contact me at traceywhitewoodneal@yahoo.co.uk or by writing to:
 
The Old Coach House
St James Road
Hastings
East Sussex
TN34 3LH
 
We are nationally registered charity – number 1099976 - https://register-of-charities.charitycommission.gov.uk/charity-search/-/charity-details/3964150
 
I set up the charity when I found out my son Jordan, born in 1995, had the condition. I run the UK branch of the Foundation, working in collaboration with Kim Green (the founder) and the team at the National Institutes of Health USA.
 
The charity provides support and guidance and can assist in putting families in touch with each other.
 
Donations
 
You can arrange a bank transfer:

National Westminster bank 
Sort code 60 10 15
Account number 62208624

Or cheque to:
 
PSF UK
The Old Coach House
St James Road
Hastings
East Sussex
TN34 3LH