Donate       

Patient Registry 

Connect With Us

    UK Chapter    

By subscribing to our mailing list you will receive the PSF Newsletter with family stories, medical updates and research/clinical trial updates. 
​This is NOT for the patient registry.  CLICK HERE to join the Patient Registry

Subscribe to our mailing list.

* indicates required

Donate

Follow Us
The Proteus Syndrome Foundation, a 501c3 not-for-profit organization, is dedicated improving the lives of Proteus patients by funding AKT1 research. We focus on providing family support in the form of education and networking individuals living with Proteus syndrome with other families and medical professionals.

​Website Design by Timberline Webworks
In Loving Memory of
Alexander Hoag
7/5/90 - 9/20/99
"He did a lot in 9 short years."
Vertical Divider