The PSF Forum is designated for PS parents and patients to share their own personal surgical information with other families. Due to new surgical techniques early surgeries on certain overgrowths are resulting in positive results.
The forum is searchable by keywords. So if you are looking for vascular - then type in the word vascular and anything mentioning that word will come up in your search.
To make first hand family to family surgical information accessible for PS families the PSF has added this password protected page. Simply sign up and once verified that you are a PS family you will be given a password.
This is for families/patients only.
All comments to better this experience are welcome. Please email Kim@proteus-syndrome.org
The forum is searchable by keywords. So if you are looking for vascular - then type in the word vascular and anything mentioning that word will come up in your search.
To make first hand family to family surgical information accessible for PS families the PSF has added this password protected page. Simply sign up and once verified that you are a PS family you will be given a password.
This is for families/patients only.
All comments to better this experience are welcome. Please email Kim@proteus-syndrome.org
