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Conference call for families

Monday, May 20th. 10AM Eastern Standard Time.

We are officially scheduling the conference call for May 20th at 10 am eastern standard time. The conference call-in number is below. We will discuss all issues suggested including

-shoe issues
-independence
-social anxiety

Hope all can join in. Thank you

dial #18665034612
meeting code 5522365478#

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Medical Research

Dr. Leslie Biesecker has discovered the cause of Proteus syndrome. See our FAQ section for more information.

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Helpful Resources

Resources that help to find a cure for individuals living with Proteus Syndrome.

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Alex Hoag Run For Sunshine

In Loving Memory of
Alexander Hoag
7/5/90 - 9/20/99
"He did a lot in 9 short years."