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UPDATE: 7/1/2011 Dr. Biesecker is in communication with pharmaceutical research companies to develop and test drugs that may be useful for patients with Proteus syndrome

GROUNDBREAKING NEWS! THE CAUSE OF PROTEUS SYNDROME HAS BEEN DISCOVERED!

7/27/2011 Dr. Leslie Biesecker at the NIH has identified the genetic mutation that causes Proteus syndrome.  For more information on this exciting finding see our FAQ and Medical Research sections.

Follow this link to the NIH website to learn more.  http://www.genome.gov/27544866

 


 

 

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Medical Research
Dr. Leslie Biesecker has discovered the cause of Proteus syndrome. See our FAQ section for more information.
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Resources that help to find a cure for individuals living with Proteus Syndrome.
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In Loving Memory of
Alexander Hoag
7/5/90 - 9/20/99
"He did a lot in 9 short years."



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