Proteus Syndrome Foundation

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    • Wheels for Jeffrey
    • 2026 Swing for Sunshine
      • Event Photos
        • 2025 Swing Fore Sunshine Photos
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    • Donate
    • The Jackie Johnson Sparkle Grant
  • Contact Us
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Wheels for Jeffrey

Donate to help get Jeffrey a new chair.
Recently Jeffrey's power wheelchair failed him.
​The brakes on his wheelchair stopped working, causing an accident that resulted in a trip to the hospital. Thankfully, Jeffrey was not seriously injured, but the incident highlighted a reality he faces every day: his current wheelchair is no longer safe or reliable.
For most of us, mobility means getting up and walking across a room. For Jeffrey, mobility means his power wheelchair. It is his independence, his freedom, and his connection to the world around him.
Jeffrey lives with Proteus syndrome and is non-ambulatory. Because of his condition, he requires a specialized power wheelchair with a leg extension to accommodate his unique physical needs. Without a safe, functioning wheelchair, everyday activities become difficult and potentially dangerous.
We are raising $6,000 to help purchase a replacement power wheelchair that will allow Jeffrey to safely navigate his daily life, attend appointments, spend time with friends and family, and continue living as independently as possible.
Every donation, no matter the size, brings Jeffrey closer to receiving the mobility equipment he urgently needs.
The Proteus Syndrome Foundation is proud to support Jeffrey, but we cannot do it alone. We are asking our community, friends, family members, and supporters to come together and help provide something many of us take for granted: the freedom to move safely.
Please consider making a tax-deductible donation today and sharing Jeffrey's story with others.
Together, we can help put Jeffrey back in motion.

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The Proteus Syndrome Foundation is a patient-led, global nonprofit dedicated to improving and extending the lives of individuals affected by Proteus syndrome. We accelerate progress toward effective treatments by funding AKT1 research, while directly supporting patients and families through education, community connection, and critical assistance programs. Through initiatives such as family conferences, summer camp, global peer networks, and medical support grants, we ensure that no family faces Proteus syndrome alone, and that every patient has access to the care, resources, and community they need to live fully.

​Website Design by Timberline Webworks
Alex Hoag
In Loving Memory of
Alexander Hoag
7/5/90 - 9/20/99
"He did a lot in 9 short years."
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  • PSF Home
  • About Proteus Syndrome
  • About Us
    • Who We Are
  • Fundraising Events
    • Wheels for Jeffrey
    • 2026 Swing for Sunshine
      • Event Photos
        • 2025 Swing Fore Sunshine Photos
  • Ways to Help
    • Donate
    • The Jackie Johnson Sparkle Grant
  • Contact Us
  • Subscribe
  • Videos
  • PSF Patient Registry