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The clinical trials at the NIH are entering Phase 2. If you would like to be considered for Phase 2 please Contact: Kim Hoag-Green. 
There are other research programs going on which you could be eligible for if you are not eligible for Phase 2 at NIH. Contact: Kim Hoag-Green for more information.

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The Proteus Syndrome Foundation, a 501c3 not-for-profit organization, is dedicated improving the lives of Proteus patients by funding AKT1 research. We focus on providing family support in the form of education and networking individuals living with Proteus syndrome with other families and medical professionals.
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In Loving Memory of
Alexander Hoag
7/5/90 - 9/20/99
"He did a lot in 9 short years."
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