By Summer Widner:
Three years ago this past July, I was told that Trey’s lungs had been compromised from the Proteus Syndrome he was diagnosed with 3 years prior (he was 4 at this time). This syndrome had already taken a leg and a finger... & many surgeries... & caused so many other issues.
The day he was diagnosed with end stage lung failure 3 years ago, I was in shock... the doctors said he wouldn’t make it another 9 months to a year... well, his 5th birthday came & went... then his 6th birthday, we spent most of the two months prior to it in the hospital because of respiratory/breathing issues. We came home a week before his 6th birthday on hospice... one of the scariest, gut wrenching days of my life. We were told to prepare for the worst. But, while on hospice a few months later, he began to get better... he didn’t need an oxygen machine. He lived a pretty normal life.... I got married, he gained 2 sisters.... & our new life started! Then he had his 7th birthday! (3 birthdays some doctors never believed he would see) Then, about 5 months ago.... a normal day, turned into a not so good day.... his oxygen dropped, he got weak. He wouldn’t let anyone see his weakness though... when family & friends would come visit, he wouldn’t slow down... even though it hurt to move so much & he just lacked the energy he needed to do the things he wanted... he still pushed & was BRAVE!
Then a couple months later, his heart started to get tired... his heart had been compensating for his lungs not doing their part for years. Trey pushed & pushed... until he just couldn’t push anymore. Proteus Syndrome took his life. His heart & lungs just weren’t strong enough to fight Proteus.
Trey had an amazing life! We gave him all that we could... & not a day went by that he didn’t laugh... or make somebody else laugh. He was the best child a mother could have. Not a day will go by that he won’t be missed & I will always be blessed to have had 7 years with him calling me “Momma”. But just knowing that he now has a perfect, painless body up in Heaven... will make the toughest days just a little bit better. Forever in my broken heart... I love & miss you, my sweet baby boy, Trey. Heaven must have needed a HERO today! 💙