The PSF is solely supported by donations and through member fundraising. If you would like to host a fundraiser and need any help please contact the foundation by clicking here.
The Proteus Syndrome Foundation, a 501c3 not-for-profit organization, is dedicated improving the lives of Proteus patients by funding AKT1 research. We focus on providing family support in the form of education and networking individuals living with Proteus syndrome with other families and medical professionals.
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In Loving Memory of
Alexander Hoag 7/5/90 - 9/20/99 "He did a lot in 9 short years." Vertical Divider
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