Proteus Syndrome Foundation

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  • 2025 CAMP
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    • About Proteus Syndrome
    • Clinical Trials
    • Genetic Testing
    • Videos
    • 2024 Conference Presentations
    • Glossary
  • Researchers & Physicians
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    • Clinical Trials & Research Pipeline
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    • The Jackie Johnson Sparkle Grant
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Proteus Family Sunshine Retreat

Registration is open and will close on Friday April 11, 2025 or sooner if we reach capacity!
Location: Barbara C. Harris Retreat and Conference Center in Greenfield, NH.
Fees:
$150: 18 and over
$100:  5 thru 17
$ 25: Children under 5
We have a fee cap of $500 per family. 
We have a LIMITED NUMBER of travel scholarships for this year. Applications close on April 11th and can be found here.
​

Included in your registration fee:
3 meals a day
All the fun activities that you can imagine
Hotel style lodging with private bathroom and shared kitchenette

Getting here:
You will need a car to get to Retreat.
Flying? Boston Logan is about 2 hours from Retreat and often has cheaper rates. Manchester NH Airport is about 45 minutes from camp.

For questions about camp registration or specific accommodation needs, please contact Zebra Crossings at [email protected]
​

If you’d like to be a generous sponsor of The Proteus Family Sunshine Retreat, please email Kim Green at [email protected]

When you click on the link below to reserve a space for you and your family please understand that there is no payment expected at this time. You will receive a phone call from our partners at Zebra Crossings' where you can discuss scholarships to attend, medical concerns, or any concerns. We will not be offering translators at this camp. Everyone is invited but please know that service will not be available. There is a button on the top right of the linked information page that says REGISTER NOW. Click and start filling out the forms. Remember no registration money is due at this time.  
SEE YOU AT CAMP!

CLICK HERE TO REGISTER FOR CAMP
Apply for Travel Grant

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The Proteus Syndrome Foundation, a 501c3 not-for-profit organization, is dedicated improving the lives of Proteus patients by funding AKT1 research. We focus on providing family support in the form of education and networking individuals living with Proteus syndrome with other families and medical professionals.

​Website Design by Timberline Webworks
Alex Hoag
In Loving Memory of
Alexander Hoag
7/5/90 - 9/20/99
"He did a lot in 9 short years."
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  • PSF Home
  • About Us
    • Who We Are
    • Board of Directors
    • Medical Advisory Board
    • Partners
  • 2025 CAMP
  • Patients & Families
    • About Proteus Syndrome
    • Clinical Trials
    • Genetic Testing
    • Videos
    • 2024 Conference Presentations
    • Glossary
  • Researchers & Physicians
    • Proteus 101
    • Clinical Trials & Research Pipeline
    • Genetic Testing
    • Resources
  • Ways to Help
    • Donate
    • Fundraise
    • The Jackie Johnson Sparkle Grant
  • Patient Registry
  • Contact Us
  • Subscribe