Proteus Syndrome Foundation

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  • PSF Home
  • 2022 PSF Family Conference
  • About Us
    • Who We Are
    • Board of Directors
    • Medical Advisory Board
    • Partners
  • Published Papers
  • Patients & Families
    • About Proteus Syndrome
    • Clinical Trials
    • Genetic Testing
    • Resources
      • Videos
      • Documentary
      • Glossary
    • Covid 19 and Proteus Syndrome
  • Researchers & Physicians
    • Proteus 101
    • Clinical Trials & Research Pipeline
    • Genetic Testing
    • Resources
  • Ways to Help
    • Donate
    • Fundraise
    • Family Assistance Program
    • The Jackie Johnson Sparkle Grant
  • Contact Us
  • Subscribe

PSF
​Family Conference Registration 

Please read through all the information below and then download the form at the bottom of the page to register for the conference.

A formal schedule of presenters will be coming soon. 
This years PSF Conference will take place in Bethesda, MD at the Bethesda Hotel - 8120 Wisconsin Avenue, Bethesda, MD. 20814 - October 7-8 2022
We will have an informal Check In/Meet and Greet on Thursday night (Oct. 6).
Friday & Saturday - October 7 & 8 will be full day presentations with a dinner reception
Saturday night at the hotel. 

We have secured special room rates at the hotel for Single/Double Occupancy at $129+ per room.
To reserve a room you can call the hotel at 301-652-2000 (Please tell them Proteus Syndrome Foundation Conference Room Rate)
or
​click the box below to reserve online: 
CLICK HERE FOR ROOM RESERVATION

​To pay for the conference you can send a check to: 
Proteus Syndrome Foundation
9296 Penobscot Ct., Colorado Springs, CO 80924
or you can click the link below to pay by CC. 
There is an opportunity to donate extra to help offset the cost for families.
​If we receive more than the regular reservation fee that where we will apply the money.
​There is a box for you to check on the form. 
CLICK HERE TO PAY CONFERENCE FEES
CLICK HERE TO DOWNLOAD & PRINT REGISTRATION FORM

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The Proteus Syndrome Foundation, a 501c3 not-for-profit organization, is dedicated improving the lives of Proteus patients by funding AKT1 research. We focus on providing family support in the form of education and networking individuals living with Proteus syndrome with other families and medical professionals.

​Website Design by Timberline Webworks
Alex Hoag
In Loving Memory of
Alexander Hoag
7/5/90 - 9/20/99
"He did a lot in 9 short years."
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  • PSF Home
  • 2022 PSF Family Conference
  • About Us
    • Who We Are
    • Board of Directors
    • Medical Advisory Board
    • Partners
  • Published Papers
  • Patients & Families
    • About Proteus Syndrome
    • Clinical Trials
    • Genetic Testing
    • Resources
      • Videos
      • Documentary
      • Glossary
    • Covid 19 and Proteus Syndrome
  • Researchers & Physicians
    • Proteus 101
    • Clinical Trials & Research Pipeline
    • Genetic Testing
    • Resources
  • Ways to Help
    • Donate
    • Fundraise
    • Family Assistance Program
    • The Jackie Johnson Sparkle Grant
  • Contact Us
  • Subscribe