Jordan Whitewood-Neal
2014 October Newsletter

Research is moving forward and a treatment is in our near future. We have come such a long way since 1992 when this foundation was started. To get to the point we are at now with a treatment in our future we had to endure many, many losses. At one point the foundation decided to focus on making the children comfortable while they were with us because the outlook was so bleak we wanted them happy. It is not that way anymore. We know so much more and are so moving forward at a good solid speed. This is due to Leslie Biesecker, MD and his amazing support team at the National Institu
tes of Health. We have been a team for a long time and together we will solve the mystery of Proteus syndrome for all of the PSF families. ~kim hoag

2014 October Newsletter

Nov 05, 2014 | Category: Newsletters | Comments: none


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