- 2012 December Newsletter
- The cause has been found – What are your thoughts?
- Family Conference
- 2011 March Newsletter
- The Manifold Faces of Proteus Syndrome
The 2011 PSF Conference was as always an incredible experience! It is always so good to be able to spend time with PS families and share stories. By putting it on YouTube this year we were able to allow those families who were not able to attend the opportunity to hear all of the doctors speeches. Dr. Leslie Biesecker and the NIH Proteus team gave reports and full details into finding the cause of Proteus syndrome. Another outstanding moment was when the kids (pictured here) each got up and shared with Dr.
Biesecker how his discovery of the cause of Proteus syndrome changed their lives. Many of you saw this moment on Youtube…these kids are to be admired for their courage and their dignity. [Read More]