 April 2010
This latest newsletter talks about PSF and PSF UK gift to Biesecker Lab, the postponing of the conference, updates on Sebastian, the Biesecker Lab, Jeffery, and Jordan.
June 2009
This latest newsletter talks about Jordan's Tough decision, Keynote Speech from the PSF Conference, Alex Hoag's Graduation, pictures from the 9th annual Alex Hoag Run.
May 2008
This latest newsletter talks about Jeffrey Ortega, an update to the Medical Resource Dictionary, Dates for the Proteus Syndrome Family Conference.
December 2006
This latest newsletter talks about the recent Family Conference, the Orthopedic Workshop 2007, an article on living with Proteus Syndrome.
June 2006
This issue has information of the PSF documentary "Boy in a Million".An update on the Alex Run. An article on living with Proteus Syndrome.
Summer 2005
The Summer Issue of the PSF Newsletter. It contains the diagnostic criteria for Proteus Syndrome, the upcoming Orthopedic Research Conference, a review of the Alex Hoag Run for Sunshine, our Sunshine society and the Ways to Donate are inside!
December 2004
The Special Holiday Issue of the PSF Newsletter. The Orthopedic Research Conference, our Sunshine society, pictures from the Family Conference and the Ways to Donate are inside!
|
