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The Proteus Syndrome Foundation has been founded to support and educate families and professionals, and to raise money for research to find a cure for individuals living with Proteus Syndrome.

We are a 501C3 not-for-profit organization.

The most effective method of showing your support for the organization is to donate online now. Your donations help us fund much needed research to find a cure.

Please make your donation today!

Upcoming Events

Alexander Hoag
In Loving Memory of
Alexander Hoag
7/5/90 - 9/20/99
"He did a lot in 9 short years."

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