Privacy Policy

This document sets forth the Proteus Syndrome Foundation Privacy Policy (the “Privacy Policy”) for this Web site, www.proteu-syndrome.org (the “Site”). If you have objections to the Privacy Policy, you should not access or use this Site. This Privacy Policy does not govern privacy practices associated with offline activities.

Changes in Privacy Policy
All “personal information” (“personal information” is defined as any information that identifies or can be used to identify, contact, or locate the person to whom such information pertains) that we collect and maintain will be subject to the version of the Privacy Policy in effect at the time of such collection. The Proteus Syndrome Foundation reserves the right to change the Privacy Policy from time to time at its sole discretion, and will provide notice of material changes on the home page of the Site.

Entities collecting personal information
Personal information on this Site is collected by the Proteus Syndrome Foundation. the Proteus Syndrome Foundation’s address is 4915 Dry Stone Dr., Colorado Springs, CO 80923 and its telephone number is (901)756-9375.

The Site contains links to other sites at which personal information is collected. In such instances, unless expressly provided to the contrary, the collection and use of your personal information will be governed by the privacy policy applicable to that site. That privacy policy should identify the entity that is collecting your personal information.

Collection of personal information
As a visitor to this Site, you can engage in many activities without providing any personal information. In connection with other activities, such as volunteering or requesting information, the Proteus Syndrome Foundation may ask you to provide certain information about yourself by filling out and submitting an online form. It is completely optional for you to engage in these activities. If you elect to engage in these activities, however, the Proteus Syndrome Foundation may ask that you provide us personal information, such as your first and last name, mailing address (including ZIP code), e-mail address, and telephone number. When ordering products or services on the Site, you may be asked to provide a credit card number. Depending upon the activity, some of the information that we ask you to provide is identified as mandatory and some as voluntary. If you do not provide the mandatory data with respect to a particular activity, you will not be able to engage in that activity.

When you use the Site, the Proteus Syndrome Foundation or third parties authorized by the Proteus Syndrome Foundation may also collect certain technical and routing information about your computer to facilitate your use of the Site and its services. For example, we may log environmental variables, such as browser type, operating system, CPU speed, and the Internet Protocol (“IP”) address of your computer. We use these environmental variables to facilitate and track your use of the Site and its services. The Proteus Syndrome Foundation also uses such environmental variables to measure traffic patterns on the Site. Without expressly informing you in each particular circumstance, we do not match such information with any of your personal information.

The Proteus Syndrome Foundation has established relationships with various service providers whose services are available to you from this Site or from Web sites that are linked to this Site. Typically, these providers offer services that the Proteus Syndrome Foundation customers might find useful. In order to use those services, you may be required to provide personal information to the providers. Unless expressly provided to the contrary, personal information that you provide while you are visiting a provider’s Web site will be subject to the privacy policy posted on such site, and personal information that you provide while on this Site in conjunction with a provider’s service will be subject to this Privacy Policy. You should be aware that our agreements with these service providers often provide that they will share with the Proteus Syndrome Foundation personal information collected from you. In such instances, the Proteus Syndrome Foundation may use this information in a manner consistent with this Privacy Policy.

How your personal information is used
The Proteus Syndrome Foundation collects your information in order to record and support your participation in the activities you select. The Proteus Syndrome Foundation may collect information about the use of the Site, such as the types of services used and how many users we receive daily. This information is collected in aggregate form, without identifying any user individually. The Proteus Syndrome Foundation may use this aggregate, non-identifying statistical data for statistical analysis or promotional purposes.

Your choices with respect to personal information
The Proteus Syndrome Foundation recognizes and appreciates the importance of responsible use of information collected on this Site. The Proteus Syndrome Foundation will not provide your name to other companies or organizations without your consent.

There are instances in which the Proteus Syndrome Foundation may divulge your personal information. The Proteus Syndrome Foundation may provide your personal information if necessary, in the Proteus Syndrome Foundation’s good faith judgment, to comply with laws or regulations of a governmental or regulatory body or in response to a valid subpoena, warrant, or order or to protect the rights of the Proteus Syndrome Foundation or others.

Use of cookies
When you visit this Site, you can browse the Site and access important information without revealing your identity. In order to improve our Site, we use “cookies” to track your visit. A cookie is a small amount of data that is transferred to your browser by a Web server and can only be read by the server that gave it to you. It cannot be executed as code or deliver viruses.

Most browsers are initially set to accept cookies. You can set your browser to notify you when you receive a cookie, giving you the chance to decide whether to accept it. (For some Web pages that require an authorization, cookies are not optional. Users choosing not to accept cookies will probably not be able to access those pages.)

While the Proteus Syndrome Foundation may use cookies to track your visit to proteus-syndrome.org, and our Web servers automatically log the IP/Internet address of your computer, the Proteus Syndrome Foundation does not generally use this information to identify you personally. However, if you expressly provide consent for proteus-syndrome.org to “remember” the unique identifier that you select when you register for various activities on the site, that unique identifier will be stored on a cookie on your computer, linked to your registration information, and your navigation path around the site will be tracked. We associate this data to understand how our site and services are being used so we can understand our customers and offer appropriate services.

Privacy-related inquiries and complaints
The Proteus Syndrome Foundation takes its users’ privacy concerns seriously. Personal information submitted through this Site is not accessible online. If you believe that the Proteus Syndrome Foundation has not complied with this Online Privacy Policy with respect to your personal information or you have other related inquiries or concerns, you may write to the Proteus Syndrome Foundation Privacy Officer at the following address:

Proteus Syndrome Foundation
4915 Dry Stone Dr.
Colorado Springs, CO 80923

In your letter, please describe in as much detail as possible the nature of your inquiry or the ways in which you believe that the Proteus Syndrome Foundation Online Privacy Policy has not been complied with. We will investigate your inquiry or complaint promptly.

Please note that the Proteus Syndrome Foundation is not responsible for the content or privacy practices of non-Proteus Syndrome Foundation Web sites to which this Site or any other the Proteus Syndrome Foundation Web site may link. You should review the privacy policy of such sites before using the sites.

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Alexander Hoag
In Loving Memory of
Alexander Hoag
7/5/90 - 9/20/99
"He did a lot in 9 short years."

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