Newsletters

The 2011 PSF Conference was as always an incredible experience! It is always so good to be able to spend time with PS families and share stories. By putting it on YouTube this year we were able to allow those families who were not able to attend the opportunity to hear all of the doctors [...]

I hope this newsletter finds everyone doing well. I apologize for the gap in newsletters. They are expensive to print and mail therefore I feel it is better to wait until I can fill them with valuable information instead of just printing something every month or two. The Alex Run was once again a great [...]

This latest newsletter talks about PSF and PSF UK gift to Biesecker Lab, the postponing of the conference, updates on Sebastian, the Biesecker Lab, Jeffery, and Jordan. » Click here to download the 2010 April Newsletter (pdf) 

This latest newsletter talks about Jordan’s Tough decision, Keynote Speech from the PSF Conference, Alex Hoag’s Graduation, pictures from the 9th annual Alex Hoag Run. » Click here to download the 2009 June Newsletter (pdf) 

This latest newsletter talks about Jeffrey Ortega, an update to the Medical Resource Dictionary, Dates for the Proteus Syndrome Family Conference. » Click here to download the 2008 May Newsletter (pdf) 

This latest newsletter talks about the recent Family Conference, the Orthopedic Workshop 2007, an article on living with Proteus Syndrome. » Click here to download the 2006 December Newsletter (pdf) 

This issue has information of the PSF documentary “Boy in a Million”.An update on the Alex Run. An article on living with Proteus Syndrome. » Click here to download the 2006 June Newsletter (pdf) 

The Summer Issue of the PSF Newsletter. It contains the diagnostic criteria for Proteus Syndrome, the upcoming Orthopedic Research Conference, a review of the Alex Hoag Run for Sunshine, our Sunshine society and the Ways to Donate are inside! » Click here to download the 2005 Summer Newsletter (pdf) 

The Special Holiday Issue of the PSF Newsletter. The Orthopedic Research Conference, our Sunshine society, pictures from the Family Conference and the Ways to Donate are inside! » Click here to download the 2004 December Newsletter (pdf)