December 2016 USA Newsletter

PSF Newsletter December 2016

Read More » | January 17, 2017 | Category: Newsletters | Comments: none

December 2015 UK Newsletter

UK Newsletter 2015_LR

Read More » | January 10, 2016 | Category: Newsletters | Comments: none

2014 October Newsletter

Research is moving forward and a treatment is in our near future. We have come such a long way since 1992 when this foundation was started. To get to the point we are at now with a treatment in our future we had to endure many, many losses. At one point the foundation decided to […]

Read More » | November 5, 2014 | Category: Newsletters | Comments: none

2012 December Newsletter

The 2011 PSF Conference was as always an incredible experience! It is always so good to be able to spend time with PS families and share stories. By putting it on YouTube this year we were able to allow those families who were not able to attend the opportunity to hear all of the doctors […]

Read More » | December 6, 2012 | Category: Newsletters | Comments: none

2011 March Newsletter

I hope this newsletter finds everyone doing well. I apologize for the gap in newsletters. They are expensive to print and mail therefore I feel it is better to wait until I can fill them with valuable information instead of just printing something every month or two. The Alex Run was once again a great […]

Read More » | July 7, 2011 | Category: Newsletters | Comments: none

2010 April Newsletter

This latest newsletter talks about PSF and PSF UK gift to Biesecker Lab, the postponing of the conference, updates on Sebastian, the Biesecker Lab, Jeffery, and Jordan. » Click here to download the 2010 April Newsletter (pdf) 

Read More » | April 4, 2010 | Category: Newsletters | Comments: none

2009 June Newsletter

This latest newsletter talks about Jordan’s Tough decision, Keynote Speech from the PSF Conference, Alex Hoag’s Graduation, pictures from the 9th annual Alex Hoag Run. » Click here to download the 2009 June Newsletter (pdf) 

Read More » | June 5, 2009 | Category: Newsletters | Comments: none

2008 May Newsletter

This latest newsletter talks about Jeffrey Ortega, an update to the Medical Resource Dictionary, Dates for the Proteus Syndrome Family Conference. » Click here to download the 2008 May Newsletter (pdf) 

Read More » | May 8, 2008 | Category: Newsletters | Comments: none

2006 December Newsletter

This latest newsletter talks about the recent Family Conference, the Orthopedic Workshop 2007, an article on living with Proteus Syndrome. » Click here to download the 2006 December Newsletter (pdf) 

Read More » | December 15, 2006 | Category: Newsletters | Comments: none

2006 June Newsletter

This issue has information of the PSF documentary “Boy in a Million”.An update on the Alex Run. An article on living with Proteus Syndrome. » Click here to download the 2006 June Newsletter (pdf) 

Read More » | June 2, 2006 | Category: Newsletters | Comments: none



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