- 2012 December Newsletter
- The cause has been found – What are your thoughts?
- Family Conference
- 2011 March Newsletter
- The Manifold Faces of Proteus Syndrome
After 15 years of research Dr. Biesecker’s research project had a major break through and discovered the cause of Proteus syndrome. AKT1. I am so happy that the Proteus Syndrome Foundation can be a part of this discovery. For 15 years we have sent our families to Dr. Biesecker’s research project to be evaluated, diagnosed [...]