The cause has been found – What are your thoughts?

After 15 years of research Dr. Biesecker’s research project had a major break through and discovered the cause of Proteus syndrome. AKT1. I am so happy that the Proteus Syndrome Foundation can be a part of this discovery. For 15 years we have sent our families to Dr. Biesecker’s research project to be evaluated, diagnosed […]

Read More » | August 1, 2011 | Category: Blog | Comments: 6

Growth of Skin Lesions
2006 PSF Family Conference Presentations

View the Conferences Lectures below: Skin Changes – Dr. Tom Darling What is Proteus Syndrome? – Dr. Michael Cohen Jr.

Read More » | December 5, 2006 | Category: Blog | Comments: none

Upcoming Events

3rd Annual Swing For Sunshine
benefiting the Proteus Syndrome Foundation

July 18, 2014
Cheyenne Mountain Resort
Colorado Springs, Colo.

>> More Info


Alexander Hoag
In Loving Memory of
Alexander Hoag
7/5/90 - 9/20/99
"He did a lot in 9 short years."

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