- World Renowned Medical Advisory Board that helps direct the foundation to meet its goals
- Family Conferences
- Telephone support
- Immediate access to medical information and articles
- Proteus Syndrome Foundation Newsletter
- Information about new research programs throughout the world
- Access to financial help and practical advise
- E-mail Hotline: Online support, family to family
- Family Directory
Recent News
- 2012 December Newsletter
- The cause has been found – What are your thoughts?
- Family Conference
- 2011 March Newsletter
- The Manifold Faces of Proteus Syndrome
