The PSF Provides

  • World Renowned Medical Advisory Board that helps direct the foundation to meet its goals
  • Family Conferences
  • Telephone support
  • Immediate access to medical information and articles
  • Proteus Syndrome Foundation Newsletter
  • Information about new research programs throughout the world
  • Access to financial help and practical advise
  • E-mail Hotline: Online support, family to family
  • Family Directory

Upcoming Events


Alexander Hoag
In Loving Memory of
Alexander Hoag
7/5/90 - 9/20/99
"He did a lot in 9 short years."

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